AHRQ’s “Registries for Evaluating Patient Outcomes: A User’s Guide”


 

"Registries for Evaluating Patient Outcomes: A User's Guide" published by the Agency for Healthcare Research and Quality (AHRQ) is a landmark federal publication providing key information on developing, operating and evaluating patient registries. The handbook provides tools intended to help evaluate the quality of a patient registry. The handbook is electronically available at AHRQ's website www.ahrq.hhs.gov.

Outcome led the development of the handbook. Outcome's Drs. Richard Gliklich and Nancy Dreyer served as the project's principal investigators and senior editors. The work was performed under contract to Outcome through its role as an AHRQ DEcIDE Research Center, a component of AHRQ's Effective Health Care initiative.

Read the press release.

2nd Edition Published 

The second edition of the User’s Guide, which reflects the work of more than 80 contributors from government, academic and private sectors, includes:

  • New methodological developments
  • Emerging topics in registry science, including updates on safety
  • Technological advances
  • Operational examples and case studies from around the world 


Updates to the original 11 chapters from the 2007 version of the handbook are included, as well as four new sections:

  • Use of Registries in Product Safety Assessment
  • Planning for the End of a Patient Registry
  • Interfacing Registries and EHRs
  • Linking Registry Data


The second edition includes 38 case studies, which illustrate real-life challenges in the design and conduct of registries. Contributors came from industry, academia, and government, with representation from various agencies in the U.S., as well as the National Institute for Health and Clinical Excellence in the U.K.  

Download or Request a Copy

Dowload a pdf version of the handbook at www.ahrq.hhs.gov or click here.

To request a free copy of Registries for Evaluating Patient Outcomes: A User’s Guide, Second Edition (AHRQ Publication Number 10-EHC049):
Call: 1-800-358-9295
E-mail: ahrqpubs@ahrq.hhs.gov  

 

 

Outcome-Led Handbook for Patient Registry Development Published by AHRQ
"This new reference will be a tremendous resource to researchers, patient groups, health insurers, pharmaceutical companies and others who are eager to investigate which treatments work best...databases that depict outcomes in patient populations over time carry great potential for advancing the quality, safety and effectiveness of health care."

AHRQ Director, Carolyn M. Clancy, MD.