AHRQ’s “Registries for Evaluating Patient Outcomes: A User’s Guide”
"Registries for Evaluating Patient Outcomes: A User's Guide" published by the Agency for Healthcare Research and Quality (AHRQ) is a landmark federal publication providing key information on developing, operating and evaluating patient registries. The handbook provides tools intended to help evaluate the quality of a patient registry. The handbook is electronically available at AHRQ's website www.ahrq.gov.
Outcome led the development of the handbook. Outcome's Drs. Richard Gliklich and Nancy Dreyer served as the project's principal investigators and senior editors. The work was performed under contract to Outcome through its role as an AHRQ DEcIDE Research Center, a component of AHRQ's Effective Health Care initiative.
Read the press release.
AHRQ and Outcome Collaborate on Handbook Update
Following the success of "Registries for Evaluating Patient Outcomes: A User's Guide," AHRQ and Outcome are again working together to create a second edition of the popular publication. Work is currently underway to update the existing chapters and write new case examples. Collaborators have also been exploring new topics for inclusion in the second edition, and these efforts have led to the drafting of four white papers on the following topics:- Linking Registry Data: Technical and Legal Considerations
- Interfacing Registries with EHRs
- When Should a Patient Registry End?
- Use of Registries in Product Safety Assessment
These white papers were written through a collaborative effort of experts in industry, academia, and government, and will be posted for public comment until 15 September 2009 at the AHRQ Effective Healthcare website here: Work will then begin on incorporating these white papers as new chapters in the handbook.