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AHRQ’s “Registries for Evaluating Patient Outcomes: A User’s Guide”
"Registries for Evaluating Patient Outcomes: A User's Guide" published by the Agency for Healthcare Research and Quality (AHRQ) is a landmark federal publication providing key information on developing, operating and evaluating patient registries. The handbook provides tools intended to help evaluate the quality of a patient registry. The handbook is electronically available at AHRQ's website www.ahrq.gov. Outcome led the development of the handbook. Outcome's Drs. Richard Gliklich and Nancy Dreyer served as the project's principal investigators and senior editors. The work was performed under contract to Outcome through its role as an AHRQ DEcIDE Research Center, a component of AHRQ's Effective Health Care initiative. Read the press release. AHRQ and Outcome Collaborate on Handbook UpdateFollowing the success of "Registries for Evaluating Patient Outcomes: A User's Guide," AHRQ and Outcome are again collaborating to create a second edition of the popular publication. Working with the contributors and reviewers from the 2007 version of the handbook, the original 11 chapters and case examples were updated to address new methodological, technological, and legal topics. Four new white papers were drafted and reviewed by subject matter experts with a broad range of perspectives and then posted for public comment. These white papers were revised in response to public comments and incorporated into the expanded handbook. The four new sections of the handbook are entitled:
Finally, a public call for new case examples was posted on the Effective Health Care Web site in June 2009. Of the dozens of examples received, 15 new case examples were selected for their utility in illustrating issues and challenges related to the new topics addressed in the expanded handbook. Overall, the second edition incorporates the expertise and knowledge of 55 contributors from industry, academia, health plans, physician societies and government; 49 invited peer reviewers and dozens of comments received by the public; and 38 case examples illustrating challenges and solutions in creating, operating and evaluating patient registries. The second edition of the handbook is in the final stages of copyediting and production and is scheduled to be released online and in print format in the fall of 2010.
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