Registry of Patient Registries (RoPR)
Registry of Patient Registries (RoPR) Temporarily Unavailable
The contract that supports the Registry of Patient Registries (RoPR) expired on September 30, 2013. This will result in a temporary suspension of the RoPR database search function and registration system. The Agency for Healthcare Research and Quality is now working to award a new RoPR contract, and the RoPR will resume full operations when the new contract is in place. If you have previously posted a registry on the RoPR, your listing will be available to view and edit when the system is re-activated.
About the RoPR
Patient registries are increasingly being used to support a wide range of clinical studies. While clinical trials must be registered in ClinicalTrials.gov, there is no such mandate for observational studies. The goal of the RoPR database is to ensure registries are used in the most efficient manner and to encourage collaboration between patients and consumers, healthcare providers, researchers, research funding organizations, public health organizations, private health plans, employers, public insurance programs, journal editors, and pharmaceutical and device manufacturers. This project is being funded by the American Recovery and Reinvestment Act (ARRA), which is an economic stimulus package that was enacted by the 111th United States Congress in February 2009.
The main objectives of the RoPR database are to:
To learn more, please contact us at firstname.lastname@example.org.
AHRQ Registries Handbook: 3rd Edition
This AHRQ task order also includes the development of the third edition of the guide, "Registries for Evaluating Patient Outcomes: A User’s Guide,” a Federal publication that provides information on designing, implementing, and evaluating patient registries. The third edition will provide more timely information regarding new methodological, legal, and operational challenges and advances.
This project is scheduled to be completed Fall 2013. For more information, please contact us at email@example.com.